Hospice care is a specialized type of care for individuals with a terminal illness. It focuses on providing comfort and support rather than curative treatment. While hospice is designed to offer end-of-life care, there are instances where a patient might be “sent off hospice.” This can be a confusing and distressing experience for both the patient and their family. Let’s explore what this might mean.
What Happens When a Patient Gets Sent Off Hospice?
The term “sent off hospice” can be misleading. It doesn’t mean a patient is being discharged because they are improving. Instead, it typically indicates one of the following:
- Improvement in Condition: In rare cases, a patient’s condition may unexpectedly improve, leading to a decision to discontinue hospice services. This is often followed by a transition to another level of care
- Change in Care Needs: As a patient’s condition progresses, their care needs might change. If hospice can no longer adequately address these needs, a transfer to a different care setting may be necessary. “Level of care is one of many things to consider when choosing a hospice. Patient and caregiver needs may impact the level of care a hospice provides.” [Source: Medicare.gov]
- Misunderstanding of Hospice: Sometimes, there might be a misunderstanding about what hospice care entails. If a patient or family believes that hospice means giving up hope, they might opt to discontinue services
What to Expect After Being Sent Off Hospice
The next steps after a patient is sent off hospice will depend on their specific situation. It’s essential to have open communication with the hospice team and other healthcare providers to understand the options available. These might include:
- Transition to Another Care Setting: This could involve moving to a skilled nursing facility, rehabilitation center, or returning home with increased home health services. In fact, when facing a serious illness, navigating the types of care available can be overwhelming. Terms like “hospice,” “end of life care,” and “palliative care” are often used interchangeably, but they each serve distinct purposes [Read more about the specific differences in our blog here]
- Resuming Treatment: If a patient’s condition improves significantly, they might choose to resume treatment aimed at extending life
- Exploring Palliative Care: Palliative care focuses on relieving symptoms and improving quality of life, which can be a suitable option for many patients. Read more about the specific differences between Palliative and hospice care in our blog here.
Coping with the Emotional Impact
Being sent off hospice can be emotionally challenging. It’s important to allow yourself time to process your feelings and seek support from loved ones, friends, or a support group. Remember, it’s okay to experience a range of emotions, including sadness, anger, or confusion.
If you’re facing this situation, it’s crucial to ask questions, seek clarification, and advocate for your loved one’s needs. Communicate your loved one’s wishes to physicians and other healthcare professionals. Understanding the reasons behind the decision can help you make informed choices and provide the best possible care.
Navigating the Transition with Clarity & Understanding
While the phrase “what happens when a patient gets sent off hospice” might sound alarming, it’s essential to approach the situation with clarity and understanding. Open communication with the healthcare team is key to navigating this transition and ensuring your loved one’s needs are met.
Remember, every situation is unique and all transitions through levels of care for your family can be emotional and stressful. Focus on providing comfort and support to your loved one during this challenging time.
Would you like to know more about specific situations or have other questions about hospice care? Reach out to the Pikes Peak Hospice care team for answers, support, and patient and family centered care delivered at home.